About Me

My name is Tom Parkinson. It is a pseudonym I chose to protect my privacy as a business owner. I was born in 1970, live in the Rhine-Neckar metropolitan region in Germany and was 50 years old when I was diagnosed.

The diagnosis

Starting in early summer 2020, my left foot cramped up, and the fingers of my left hand became less mobile. In December 2020, a neurologist in Mannheim made a tentative diagnosis of Parkinson's, and a DaTscan in January 2021 confirmed it. All the doctors advised me to take medication. I decided against it, at least for the time being, and began searching worldwide for other ways.

The first six months were the worst time of my life, with depression. The more options I discovered, the more my hope came back. In fall 2021, I felt for the first time physically as well: things are getting better. The depression has not come back since.

Where I stand today (fall 2026)

Six years after the diagnosis, most people around me don't notice anything of my illness. In January 2026, my neurologist wrote: "In summary, mild course without progression since 2021 without dopaminergic medication."

In the MDS-UPDRS Part III, the test neurologists use to assess mobility, I scored 18 points at the Technical University of Munich (TU München) in July 2021, 14 in April 2024 and 15 points in August 2025. Large studies show that the score otherwise rises by 2 to 3 points per year on average, usually even with medication. So in 2025, you would have expected around 26 to 30 points for me.

To be fair, I have to add: the gray area is a projection, not a real comparison patient, the measurements come from different doctors, and some people naturally have a milder course. And in 2026, my own measurements show more tremor again. Over the last few months, I have gotten a little worse.

What I feel: My left side of the body is affected, by now with a slight spread to the right side. The resting tremor in my left hand comes and goes; it is stronger in cold and in great heat, and weaker on vacation and after long walks. I can hike eight kilometers in one go. My sense of smell is very good, and so is my mood.

What I do today: sports and yoga every day, qigong once or twice a week, long walks almost every day. TPS once a month. PDCare and the Vielight helmet three times a week, plus the Vielight Vagus. NeuroEpo with breaks, lithium, N-acetyl-L-leucine, urolithin A and some supplements. Ice baths and breathing exercises. Regular blood tests and measurements with the Tremipen. You can find everything about this under Healing Methods.

Why this homepage

I want to show that you are not helplessly at the mercy of Parkinson's. Here I openly share everything I have tried, what it cost, what it did for me and what it didn't. All my medical findings are publicly available.

My course is a single case, and my decision against medication is not a recommendation to others. Every path deserves respect. Anyone who wants to change a treatment should always discuss it with their doctor.

My progress report, April 2026 (PDF) (German)